Rylee and Brown's Syndrome

Yesterday Rylee was finally officially diagnosed with Brown's Syndrome in her left eye. In a nutshell it is a condition that affects the mobility of the muscle attached to the top of the eyeball (there are four muscles attached to the eye, Brown's only affects the top one). You can see the affect perfectly in the picture we captured last fall. When Rylee tries to look far to the right or extreme upward her left eye goes down and to the right and when looking up it stays midline while her right eye looks where she intended it to. After several different doctors and appointments and lots of waiting, we finally were connected with Dr Gamm, a pediatric opthamologist in Madison. He is just absolutely wonderful and we fell in love with him right away. His knowledge on the topic far surpassed any doctor we had seen thus far or internet research that we were able to do. He was able to do the first fully complete eye exam on Rylee - her vision is fine. There are lots of variables and other little bits to the story but basically, Dr Gamm will follow Rylee for the next 1 1/2 years and if there is no change or her condition worsens she will have surgery in summer 2010 to help alleviate some of the tightness that muscle has - allowing her left eye to work the way it should. We are so happy to finally have some real and good answers.